The Hyper IgM Foundation Blog
The Hyper IgM Podcast – Patients Voices! Episode 3: Ezra Talks to Josh
The Hyper IgM Foundation Blog Episode 003: – Josh: In episode 3 of our Patient Voices Hyper IgM Podcast, Ezra talks with 16-year-old Josh Brown from the U.K. Like Ezra, Josh underwent a transplant at a very young age after being diagnosed with X-linked Hyper IgM...
IDF PI Conf. 2024: Hyper IgM Syndrome Sessions Recordings
The Hyper IgM Foundation Blog After a long hiatus from in-person events due to COVID restrictions, the Immune Deficiency Foundation (IDF) hosted its first national conference since 2019. Hyper IgM families from around the world joined over 1,000 attendees for two days...
The Hyper IgM Podcast – Patients Voices! Episode 2: Ezra Talks to Simon
The Hyper IgM Foundation Blog Episode 002: – Simon: In episode 2 of our Patient Voices Hyper IgM Podcast, Ezra talks to 12-year-old Simon Cooksey from Utah. Unlike Idan from Episode 1, Simon is not transplanted and is living with X-linked Hyper IgM Syndrome which...
Announcing – The Hyper IgM Podcast – Patients Voices! Episode 1: Ezra Talks to Idan
The Hyper IgM Foundation Blog Episode 001: – Idan: In the debut episode, Ezra sits down with 11-year-old Idan Zablocki from New York. Idan, diagnosed with X-linked Hyper IgM Syndrome, also known as CD40 Ligand Deficiency, at just 8 months old, faced a...
The Hyper IgM Foundation Awards $100,000 Grant to Dr. Daniele Canarutto and Prof. Luigi Naldini at the San Raffaele Telethon Institute for Gene Therapy in Milan, Italy.
The Hyper IgM Foundation Blog NEW YORK, New York—The Hyper IgM Foundation is thrilled to announce it has awarded $100,000 to Dr. Daniele Canarutto and Prof. Luigi Naldini at the San Raffaele Telethon Institute for Gene Therapy (SR-Tiget) in Milan, Italy to support...
IDF PI Conf. 2022: Long Term Follow Up for Hyper IgM – Dr. Ramsay Fuleihan
The Hyper IgM Foundation Blog Back in October 2022, the IDF in partnership with the Hyper IgM Foundation held a session as part of the 2022 PI Conference titled Long Term Follow Up for Hyper IgM Syndrome with Dr. Ramsay Fuleihan from Columbia Medical Center.
IDF Lunch & Learn: X-Linked Hyper IgM and HSCT – Dr. Andrew Gennery
The Hyper IgM Foundation Blog Back in March 2022, the IDF in partnership with the Hyper IgM Foundation held a Lunch and Learn with Dr. Andrew Gennery from Newcastle who presented on the transplantation options and outcomes for Hyper IgM Syndrome patients.
My Break for Freedom – A Road Trip for a Cure
The Hyper IgM Foundation Blog The following blog post is written by Chris Sheasby, an adult X-Linked Hyper IgM Patient living in the UK, about his experience volunteering to donate t-cells to research conducted in Milan, Italy, on gene editing for Hyper IgM Syndrome....
World PI Week Fundraiser
It is World PI Week where communities around the globe are coming together to raise awareness of Primary Immunodeficiencies and show their support for the foundations that are working tirelessly to improve the quality of life of patients in our communities. It is not...
Imagine
The Hyper IgM Foundation Blog When you look at a child, what do you imagine? Imagine that your 8-month-old child was rushed to the hospital with a strange pneumonia and has to be placed on a ventilator in the ICU. Imagine that, after weeks on the ventilator, your...
Update on COVID-19 for our Hyper IgM Syndrome Families
The Hyper IgM Foundation Blog The Hyper IgM Foundation has reached out to our world-renowned Scientific Advisory Committee to get their thoughts and experience with COVID-19 and PID and HIGM patients. Here is a summary of what they report: Gladly, none of them have...
How to avoid catching the Coronavirus: lessons from the 5 years I spent living in a bubble
The Hyper IgM Foundation Blog I’ve spent years avoiding all viruses – from the mildest common cold to the flu and other strains of Coronavirus. Today, I will share my secrets with you. Most people do not concern themselves too much with the annual and normal spread of...
Hyper IgM Foundation announces $30,000 in research grants
The Hyper IgM Foundation Blog The Hyper IgM Foundation is proud to announce the availability of seed grant funding for researchers interested in the advancement of a cure for Hyper IgM Syndrome. The intent of these grants is to accelerate scientific work focused on...
The Hyper IgM Foundation presents $10,000 grant to Dr. Maite De La Morena at Seattle Children’s Hospital
The Hyper IgM Foundation Blog NEW YORK, New York—The Hyper IgM Foundation is delighted to announce it has awarded a $10,000 grant to Dr. Maite de la Morena at Seattle Children’s Hospital to support her health-related quality of life (QoL) research in pediatric and...
Hyper IgM researcher receives $4.9 million award
The Hyper IgM Foundation Blog Congratulations to Dr. Caroline Kuo from UCLA, and BIG news for Hyper IgM!! Dr. Kuo just received a $4.9 million award from the California Institute for Regenerative Medicine (CIRM) in support of her development of a stem cell gene...
The Hyper IgM Foundation joins the primary immune deficiency treatment consortium (PIDTC)
The Hyper IgM Foundation Blog The Hyper IgM Foundation is proud to announce that it joins the Primary Immune Deficiency Treatment Consortium (PIDTC) as one of its Patient Advocacy Group (PAG) partners. The PIDTC consists of 42 centers in North America whose shared...
President and co-founder featured in the Global Genes Rare Daily
The Hyper IgM Foundation Blog President and co-founder of the Hyper IgM Foundation, Akiva Zablocki, was recently profiled in the Global Genes Rare Daily for their Rare Leader series. Check out the article below to learn more about the work Akiva, and the Foundation,...
NEW THERAPIES FOR HYPER IGM SYNDROME
The Hyper IgM Foundation Blog IDF 2019 National Conference session, "Update on Research and New Therapies: Interferon Gamma", from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Antonio Condino-Neto, MD, Ph.D. on June 21, 2019.
WHAT ABOUT CARRIERS OF X-LINKED HYPER IGM SYNDROME?
The Hyper IgM Foundation Blog IDF 2019 National Conference session, "What About Carriers of XHIGM?" from the "Are Carriers Really Unaffected? Observations in XHIGM Carrier Females", a Hyper IgM Syndrome (HIGM) Session, was presented by Troy Torgerson, MD, Ph.D. on...
TRANSPLANT OR NO TRANSPLANT?
The Hyper IgM Foundation Blog IDF 2019 National Conference session, "Transplant or No Transplant? Is Hyper IgM "Tricky" to Transplant?" from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Andrew Gennery, MD, MRCP, FRCPCH, DCH on June 21, 2019.
PRESENTATIONS FROM HYPER IGM TRACK AT 2019 IDF NATIONAL CONFERENCE
The Hyper IgM Foundation Blog For those of you who might have missed the 2019 IDF Track and the Hyper IgM Track presentations, the IDF has uploaded some of them online. Below are some of the talks we had. We had a great conference with 45 participants from the Hyper...
OVERVIEW OF CLINICAL ASPECTS OF HYPER IGM SYNDROME
The Hyper IgM Foundation Blog IDF 2019 National Conference session, "Overview of Clinical Aspects of Hyper IgM Syndrome (HIGM) and Therapeutic Options & Preventative Care", from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Antonio Condion-Neto, MD, Ph.D....
GENE EDITING FOR X-LINKED HYPER IGM
The Hyper IgM Foundation Blog IDF 2019 National Conference session, "Update on Gene Editing", from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Caroline Kou, MD on June 21, 2019.
Are Carriers Really Unaffected? Observations in XHIGM Carrier Females by Dr. Martin Evans
The Hyper IgM Foundation Blog IDF 2019 National Conference session, "Are Carriers Really Unaffected? Observations in XHIGM Carrier Females", from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Martin Evans, DO on June 22, 2019.
UPDATE ON THE HYPER IGM TRACK AT 2019 IDF NATIONAL CONFERENCE LAST WEEK
The Hyper IgM Foundation Blog We had a great conference with 45 participants from the Hyper IgM Community. This was by far the largest in-person gathering of Hyper IgM patients in the world. We made a big splash at the IDF Conference, with 1300 attendees, our HIGM...
THE HYPER IGM FOUNDATION PRESENTS $15,000 GRANT TO DR. ANTONIO CONDINO-NETO AT UNIVERSITY OF SÃO PAULO, BRAZIL
The Hyper IgM Foundation Blog NEW YORK, New York—The Hyper IgM Foundation is delighted to announce it has awarded $15,000 to Dr. Antonio Condino-Neto at University of São Paulo, Brazil, to support research into Novel Immunopathological Mechanisms of X-Linked Hyper IgM...
2019 RARE CHAMPION OF HOPE AWARD NOMINEES
The Hyper IgM Foundation Blog We are honored to see our founder and President, Akiva Zablocki, nominated for the Global Genes 2019 RARE Champion of Hope award! Akiva was nominated for this award because he has made a significant impact in rare disease advocacy. Akiva...
A RIDE FOR ANDREW – IN SUPPORT OF THE HYPER IGM FOUNDATION – UPDATED
The Hyper IgM Foundation Blog I am embarking with two friends on a cycle trip from Istanbul, Turkey back to the island of Anglesey, North Wales on the 28th March, following a route known as the ‘Iron Curtain Trail’ that borders the former Soviet countries. We have...
HYPER IGM FOUNDATION ANNOUNCES $25,000 IN RESEARCH GRANTS
The Hyper IgM Foundation Blog The Hyper IgM Foundation is proud to announce the availability of $25,000 in seed grant funding for researchers interested in the advancement of a cure for Hyper IgM Syndrome and primary immunodeficiency disorders. The intent of this...
THE CONFERENCE THAT CHANGED ONE HYPER IGM FAMILY’S TREATMENT COURSE
The Hyper IgM Foundation Blog Idan and Amanda at the 2013 IDF Conference. I wanted to share a short tidbit about our first experience of going to an Immune Deficiency Foundation (IDF) National Conference shortly after our son Idan was diagnosed. Idan was discharged...
THE HYPER IGM FOUNDATION PRESENTS $5,000 GRANT TO DR. AMIT RAWAT AT POSTGRADUATE INSTITUTE OF MEDICAL EDUCATION & RESEARCH IN CHANDIGARH, INDIA
The Hyper IgM Foundation Blog NEW YORK, New York—The Hyper IgM Foundation is delighted to announce it has awarded $5,000 to Dr. Amit Rawat at Postgraduate Institute of Medical Education & Research in Chandigarh, India to support research into the exploration of...
HYPER IGM SYNDROME ON CBS NEWS
The Hyper IgM Foundation Blog Hyper IgM Foundation founders, Akiva, and Amanda Zablocki’ story was featured on CBS New York News last night in celebration of Chanukah and all the amazing miracles Gift of Life Marrow Registry helps facilitate with their donor...
GIVING TUESDAY VOLUNTEERS NEEDED!
The Hyper IgM Foundation Blog We are looking for 10 volunteers/ambassadors for our Good Morning Hyper IgM Campaign on Giving Tuesday. Last year we had several of the families create fundraising campaigns and go live for Giving Tuesday and we hope to get even more...
$15,000 GRANT TO DR. ANTONIO CONDINO-NETO
The Hyper IgM Foundation Blog NEW YORK, New York—The Hyper IgM Foundation is delighted to announce it has awarded $15,000 to Dr. Antonio Condino-Neto at University of São Paulo, Brazil, to support research into Novel Immunopathological Mechanisms of X-Linked Hyper...
EMMA ACHILLES BATTLE RUN – WHITE CITY FUNDRAISER
The Hyper IgM Foundation Blog Big thank you to Emma Achilles for organizing a fundraiser in memory of our friend, Andrew Thomas, who passed away earlier this year. Andrew was an inspiration to us all, and Emma, who worked with him, decided to raise awareness and...
MEET MADELEINE HOLTH FROM NORWAY
The Hyper IgM Foundation Blog Update July 8th, 2021: It is with a heavy heart that I sadly share that one of our members, Madeleine Holth has passed away from complications of Hyper IgM Syndrome. She had recently been hospitalized due to a JC infection in her brain....
SUPERHERO OF THE WEEK – MEET LACHLAN PARADIS
The Hyper IgM Foundation Blog Lachlan Paradis is a 5-month-old baby boy, living in Canada. He is the only child to loving parents, Michelle Crowder and Brent Paradis. Lachlan was diagnosed with X-Linked Hyper IGM Syndrome (XHIGM) at birth. His mother, Michelle, has a...
ANDREW THOMAS – HOW I MADE IT TO 54 LIVING WITH HYPER IGM SYNDROME
The Hyper IgM Foundation Blog Update 1/4/2018: It is with a heavy heart that we share the sad news that our friend, role model, and hero, Andrew Thomas, passed away yesterday. After a long life with Hyper IgM (he was 54), the oldest in our community, and a hard fought...
HAPPY HOLIDAYS & HAPPY NEW YEAR 2018!
The Hyper IgM Foundation Blog On behalf of the whole Hyper IgM community, I wanted to thank you for all your support for our cause this year. With your help, we are building a brighter future for all children and families with Hyper IgM Syndrome. Giving Tuesday was a...
MOVING FUNDRAISER CREATED BY MOM IN HONOR OF SON WHO LOST FIGHT TO HYPER IGM
The Hyper IgM Foundation Blog This past Giving Tuesday, Savannah Phillips wanted to find a way to honor her son, Kobe Jordan, whose life was cut short by Hyper IgM Syndrome. Savannah joined other Hyper IgM families around the world in creating her own fundraising...
SOCIAL HEALTH, COMMUNITY BUILDING, AND A BIRTHDAY CELEBRATION
The Hyper IgM Foundation Blog The Long family of Georgetown, South Carolina held their childrens’ annual Birthday Fundraising Celebration this month, raising $450 for the Hyper IgM Foundation. For many years now, Julie Long has been throwing fundraiser birthday...
GENE EDITING FOR HYPER IGM SYNDROME (HIGM) PRESENTATION FROM THE 2017 IDF NATIONAL CONFERENCE
The Hyper IgM Foundation Blog For those who missed the Immune Deficiency Foundation 2017 National Conference, we have Dr. Caroline Kuo’s wonderful presentation on Gene Editing for Hyper IgM Syndrome (HIGM). This year, with the support of our generous donors,...
THE HILL FAMILY LAUNCH INNOVATIVE FUNDRAISING CAMPAIGN FOR THE HYPER IGM FOUNDATION- ONE SHAVE TO SAVE – RAISED OVER $7,000!
The Hyper IgM Foundation Blog The Hill Family launched an innovative fundraising campaign this month for The Hyper IgM Foundation called One Shave to Save. Parents of two boys who had Hyper IgM Syndrome, the Joshua and Tiffany Hill have had quite the journey in the...
DON’T ALLOW THE FEAR TO TAKEOVER: THE STORY OF NAR
The Hyper IgM Foundation Blog The fear of the unknown is ranked in the top 30 of every common list of fears. That was the worst part for Meaghan and Nar II Scaia — not knowing. “We deal with invisible enemies: the germs. You have to be so vigilant, constantly…. I...
THE STORY OF GUS AND ARLO – HOW PIXAR’S THE GOOD DINOSAUR INSPIRED A TRANSPLANT BOY ON HIS JOURNEY HOME
The Hyper IgM Foundation Blog A single moment can change history. For baby Gus Chisenall, that moment was on April 17, 2016. On that day, Gus began to spit up a peculiar white foamy substance and his eating became unusually scarce. His oxygen levels had dropped very...
HAPPY TRANSPLANTVERSARY TO IDAN ZABLOCKI!
The Hyper IgM Foundation Blog
THE HYPER IGM FOUNDATION PRESENTS $5,000 GRANT TO DR. CAROLINE KUO AT UCLA
The Hyper IgM Foundation Blog For Immediate Release July 5, 2017 Hannah Ross The Hyper IgM Foundation Presents $5,000 Grant to Dr. Caroline Kuo at UCLA NEW YORK, New York—The Hyper IgM Foundation is delighted to announce it has awarded $5,000 to Dr. Caroline Kuo and...
MIXED CHIMERISM POST-HEMATOPOIETIC STEM CELL TRANSPLANT (HSCT) FOR X-LINKED HYPER IGM SYNDROME (XHIGM)
The Hyper IgM Foundation Blog There were a few questions recently raised in our online community about mixed chimerism following a Hematopoietic Stem Cell Transplant (HSCT) for X-Linked Hyper IgM Syndrome (XHIGM) and what that means for a long-term cure. I thought it...
A MITZVAH – RAISING AWARENESS AND FUNDS FOR THE HYPER IGM FOUNDATION
The Hyper IgM Foundation Blog A good deed. A kindness. Or in Hebrew, a Mitzvah. These are all words that mean the same thing — to do a benevolent, charitable act sometimes from the goodness of your heart… and many times if you’re a 13-year-old boy, for your mitzvah...
HYPER IGM FOUNDATION TRAVEL SCHOLARSHIPS TO THE IDF NATIONAL CONFERENCE
The Hyper IgM Foundation BlogThe Hyper IgM Foundation has a limited number of financial need-based travel scholarships available for HIGM families attending the 2017 IDF National Conference in Anaheim, CA. If you are interested in a travel scholarship that can help...
FACES OF HYPER IGM
The Hyper IgM Foundation Blog These are the Faces of Hyper IgM Syndrome. In honor of National Primary Immunodeficiency Month and World PI Week, please help us spread the word with a Like & Share! Donate today at www.hyperigm.org/donate/ or on...
FEBRUARY 28TH IS RARE DISEASE DAY! CHECK OUT OUR ACTIVITIES AND FUNDRAISERS
The Hyper IgM Foundation BlogFebruary 28th is Rare Disease Day focused on raising awareness to rare diseases like Hyper IgM Syndrome with a focus on the research that can potentially cure these diseases. Check out some of the fundraisers and activities focused around...
RARE DISEASE DAY FUNDRAISER IN MEMORY OF TRAVIS DAVIS
The Hyper IgM Foundation BlogOn February 28th, the Hyper IgM Foundation along with the National Organization for Rare Disorders (NORD) will recognize Rare Disease Awareness Day. Rare Disease Day takes place on the last day of February each year. The main objective of...
HUNTER BILLBE’S MEMORY HONORED WITH FUNDRAISER FOR HYPER IGM FOUNDATION ON RARE DISEASE DAY
The Hyper IgM Foundation BlogLosing a child has to be about the most devastating event a human being can go through. Unfortunately, loss is something all too familiar to the parents and families in the Hyper IgM Syndrome community. We try to share some of the stories...
HYPER IGM FOUNDATION IS NOW ACCEPTING RESEARCH GRANTS PROPOSALS!
The Hyper IgM Foundation BlogThe Hyper IgM Foundation is proud to announce the availability of seed grant funding for researchers interested in the advancement of a cure for Hyper IgM Syndrome. The intent of these grants is to accelerate scientific work focused on...
HAPPY HOLIDAY SEASON!
The Hyper IgM Foundation Blog Wishing everyone a Happy Holiday Season!There is still time to help us reach our $10,000 fundraising goal.
THE HYPER IGM FOUNDATION FLYER
The Hyper IgM Foundation Blog Wishing everyone a Happy Holiday Season! There is still time to help us reach our $10,000 fundraising goal.
FOUNDATION’S FOUNDERS SHARE SON’S STORY AS HE UNDERGOES SECOND TRANSPLANT TO CURE HYPER IGM SYNDROME
The Hyper IgM Foundation Blog Help Cure Hyper IgM Syndrome! Please Like and Share! We are hoping to reach 180 shares today in honor of Idan's Transplant. You can support research for a cure through the Hyper IgM Foundation here: https://hyperigm.org/donate.
“ONCE UPON A TIME LIFE -THE BONE MARROW”
The Hyper IgM Foundation Blog Recently we came across this old kid’s show from the 80’s that has some great explanations of how the body works that are simple to understand and entertaining for children. In this episode, they go into the inner workings of the bone...
USING FACEBOOK LIVE AS A TOOL TO CONNECT WITH EXPERTS ON HYPER IGM: UPDATE ON THE CIS ANNUAL MEETING
The Hyper IgM Foundation Blog Last month, I had the honor of attending the Clinical Immunology Society’s Annual Meeting in Boston. I used the opportunity to continue to promote the Hyper IgM Foundation to physicians focused on treating Primary Immunodeficiencies (PID)...
PATIENTS STORIES – REPOST FROM FOUNDATION FOUNDERS’ BLOG
The Hyper IgM Foundation Blog This is a repost from Akiva and Amanda Zablocki’s blog that follows their son’s journey with Hyper IgM. See more at www.idanmyhero.com April 10th, 2016 – By Amanda Zablocki – Today marks the third anniversary since that fateful trip to...
PATIENT HIGHLIGHT – AARON WOLSEY
The Hyper IgM Foundation Blog To be diagnosed with Hyper IgM Syndrome is a matter of random luck. To face the challenges this diagnosis brings with perseverance and grace is a matter of character. No one embodies perseverance like young Aaron Wolsey and his mother...
MARCH 2016 NEWSLETTER AND UPDATES
The Hyper IgM Foundation Blog A Short Update from our President: On January 29th, I had the honor to represent the Hyper IgM patient community at the U.S. Immunodeficiency Network (USIDNET)’s Annual Meeting. After speaking about my own personal experience as a parent...
MARCH 2016 NEWSLETTER PATIENT HIGHLIGHT – THE HILL FAMILY
The Hyper IgM Foundation Blog Meet Liam, he is almost 1 years old and like his older brother Oliver, Liam was born with X-linked Hyper IgM Syndrome. Liam underwent a hematopoietic stem cell transplant on January 22nd and is doing very well. He has engrafted and after...
RESEARCH UPDATE – GENE EDITING FOR X-LINKED HYPER IGM T CELLS.
The Hyper IgM Foundation Blog Some exciting research news coming out of Seattle this week with the publishing of a paper in Blood Journal by the Center for Immunity and Immunotherapies, Seattle Children’s Research Institute called Targeted gene editing restores...
HYPER IGM SYNDROME IN THE NEWS – 4 YR OLD NAR PREPARES FOR TRANSPLANT
The Hyper IgM Foundation Blog February 17th, 2016 – The Middletown Press covered Nar’s journey with Hyper IgM Syndrome back in June of 2015. In this update article, the Press reports on Nar’s upcoming transplant at Sloane-Kettering Memorial Hospital in New York this...
PLANNING A BIRTHDAY PARTY? SHARE YOUR WISH TEACH YOUR CHILD THE SPIRIT OF GIVING!
The Hyper IgM Foundation Blog One of our special donors recently hosted their daughter’s birthday party using ShareYourWish (SYW), a special way to organize a birthday party while teaching your child about charitable giving. Although only 5 years old, the daughter...
HELP US SEND OUT CARE PACKAGES TO PATIENTS
The Hyper IgM Foundation Blog Here is the latest example of a care package we sent to you 1 year old with X-Linked Hyper IgM going through transplant. At the Hyper IgM Foundation we hope to send care package to the little super heroes with Hyper IgM Syndrome. when...
UPDATE ON THE USIDNET MEETING WE ATTENDED
The Hyper IgM Foundation Blog On January 29th, I had the honor to represent the Hyper IgM patient community at the U.S. Immunodeficiency Network (USIDNET)’s Annual Meeting. After speaking about my own personal experience as a parent of a child with Hyper IgM Syndrome,...
SUPPORT A HYPER IGM FAMILY – JOIN NAR’S ARMY
The Hyper IgM Foundation Blog This is Nar, a brave 4 yr old with Hyper IgM heading into transplant this Spring. We are all rooting for him! Check out his story below and follow his journey at www.FB.com/NarsArmy
HYPER IGM SYNDROME (HIGM) PRESENTATION FROM THE 2015 IDF NATIONAL CONFERENCE
The Hyper IgM Foundation Blog For those of you who missed the The Immune Deficiency Foundation 2015 National Conference, here is a link to the Presentation by Dr. Dr. Ramsay Fuleihan on Hyper IgM Syndrome (HIGM). Recording from Friday, June 26, 2015: 10:30 AM-12:30...
HYPER IGM PATIENTS IN THE NEWS – NATHAN WANTS TO BE HOME FOR CHRISTMAS
The Hyper IgM Foundation Blog Nathan is 5 years old with Hyper IgM Syndrome living in Australia . He recently underwent his 2nd Bone Marrow Transplant. We are wishing that his wish comes true from Christmas and he gets to go home!
UCLA RESEARCHERS ANNOUNCE GENE THERAPY CURE FOR 18 ‘BUBBLE BABY’ PATIENT
The Hyper IgM Foundation Blog This is very exciting news out of UCLA for the SCID Community. At the Hyper IgM Foundation we hope to raise funds to help support similar research working towards a cure for Hyper IgM Syndrome. You can still donate to our...
UPDATE ON RECENT RESEARCH – THE JAPANESE STUDY
The Hyper IgM Foundation Blog In these blog posts we hope to bring you recent summaries of relevant research for Hyper IgM Patients as well as our take away from the studies. In this post we will discuss the most recent large cohort of Hyper IgM cases out of Japan...
HYPER IGM CHILE FEATURED IN THE JAZZ HALF MARATHON NEW ORLEANS!
The Hyper IgM Foundation Blog Good luck with the Marathon Jazz Half Marathon New Orleans! Thank you for featuring Oliver, who is not only super cute, but one of our heroes and an inspiration to other children living with Hyper IgM Syndrome. See more about the little...
ASHLEY’S HALF-MARATHON IN SUPPORT OF THE HYPER IGM FOUNDATION
The Hyper IgM Foundation Blog
OUR FOUNDATION’S STORY AS TOLD IN THE GUARDIAN – OUR SON HAS A RARE, LIFE-THREATENING GENETIC DISORDER. HELP US FIND A CURE
The Hyper IgM Foundation Blog Our founders latest piece written for the Guardian US on their son, Idan, and the Hyper IgM Foundation , founded to improve the treatment, quality of life and the long term outlook for children and adults living with Hyper IgM Syndrome:...
UPDATE ON RECENT RESEARCH – THE LATIN AMERICAN STUDY
The Hyper IgM Foundation Blog In these blog posts we hope to bring you recent summaries of relevant research for Hyper IgM Patients as well as our take away from the studies. In this post we will discuss the most recent large cohort of Hyper IgM cases out of Japan...
HYPER IGM PATIENTS IN THE NEWS – NBC NEWS
The Hyper IgM Foundation Blog Idan Zablocki NBC New York News July 3rd, 2013: