The Hyper IgM Foundation Blog
When you look at a child, what do you imagine?
Imagine that your 8-month-old child was rushed to the hospital with a strange pneumonia and has to be placed on a ventilator in the ICU.
Imagine that, after weeks on the ventilator, your child is finally well enough to leave the hospital, but you are now told your child has a rare and deadly genetic disease and will have to isolate at home indefinitely because they don’t have a functioning immune system.
Imagine that the doctors tell you there is no cure for this one-in-a-million genetic disease and the median life expectancy is 24 years old. The only known curative treatment is a risky bone marrow transplant that will take at least one year of your child’s life to complete and comes with a 15% chance of death.
Now imagine that, while you are trying to decide if you roll the dice with your child’s life, you are told that there is no bone marrow match for your child, making a transplant much much riskier, if not impossible. Imagine that you are also told that, because of the pneumonia and weeks in the ICU on a ventilator, your child’s lungs are too damaged to even go into a bone marrow transplant because the harsh chemotherapy needed would be too dangerous.
Now imagine that you have no other choices and no cure in sight besides a life with weekly infusions and antibiotics — and the persistent, gnawing fear that the next virus they catch may be their last. This is the reality for so many of our families when they are diagnosed with Hyper IgM Syndrome.
This is why we created the Hyper IgM Foundation and have committed to funding research to find a cure for all children and adults living with Hyper IgM Syndrome.
This is why we ask for your support so that we can improve the lives of all children with Hyper IgM.
Help the Hyper IgM Foundation fund research to find a cure!
Thank you for your support!