Videos

The Hyper IgM Foundation Blog Episode 007:  – Marcus In episode 7 of the Hyper IgM podcast, Marcus, a 23-year-old from Sweden, joins us to share his unique journey with Hyper IgM. Marcus walks us through the effects Hyper IgM had on his family and friends, his...

The Hyper IgM Foundation Blog Episode 007:  – Chris Simpson: In episode 6 of the Hyper IgM Podcast, Chris returns to share an update on his remarkable journey as the first patient to undergo gene editing therapy for Hyper IgM Syndrome. He discusses hospital life, the...

The Hyper IgM Foundation Blog Episode 005:  – Dr. Susan Prockop: In episode 5 of the Hyper IgM Podcast, we change the focus from patients to doctors with this in depth interview of Dr. Susan Prockop, Program Director, Clinical and Translational Research; Outpatient...

The Hyper IgM Foundation Blog Episode 004:  – Chris: In episode 4 of our Patient Voices Hyper IgM Podcast, Ezra talks with 37-year-old Chris Simpson from Texas. Chris talks about growing up with a primary immune deficiency and spending his childhood in and out of...

The Hyper IgM Foundation Blog A late 2024 scientific documentary on Italian National TV (RAI) showcased the work of Dr. Naldini at the San Raffaele Telethon Institute for Gene Therapy (SR-Tiget) in Milan. Dr. Naldini's research focuses on gene-edited CD4+ T-cells at...

The Hyper IgM Foundation Blog Episode 003:  – Josh: In episode 3 of our Patient Voices Hyper IgM Podcast, Ezra talks with 16-year-old Josh Brown from the U.K. Like Ezra, Josh underwent a transplant at a very young age after being diagnosed with X-linked Hyper IgM...

The Hyper IgM Foundation Blog After a long hiatus from in-person events due to COVID restrictions, the Immune Deficiency Foundation (IDF) hosted its first national conference since 2019. Hyper IgM families from around the world joined over 1,000 attendees for two days...

The Hyper IgM Foundation Blog Episode 002:  – Simon: In episode 2 of our Patient Voices Hyper IgM Podcast, Ezra talks to 12-year-old  Simon Cooksey from Utah. Unlike Idan from Episode 1, Simon is not transplanted and is living with X-linked Hyper IgM Syndrome which...

The Hyper IgM Foundation Blog Episode 001:  – Idan: In the debut episode, Ezra sits down with 11-year-old Idan Zablocki from New York. Idan, diagnosed with X-linked Hyper IgM Syndrome, also known as CD40 Ligand Deficiency, at just 8 months old, faced a...

The Hyper IgM Foundation Blog Back in October 2022, the IDF in partnership with the Hyper IgM Foundation held a session as part of the 2022 PI Conference titled Long Term Follow Up for Hyper IgM Syndrome with Dr. Ramsay Fuleihan from Columbia Medical Center.