Videos
The Hyper IgM Podcast – Patients Voices! Episode 2: Ezra Talks to Simon
The Hyper IgM Foundation Blog Episode 002: – Simon: In episode 2 of our Patient Voices Hyper IgM Podcast, Ezra talks to 12-year-old Simon Cooksey from Utah. Unlike Idan from Episode 1, Simon is not transplanted and is living with X-linked Hyper IgM Syndrome which...
Announcing – The Hyper IgM Podcast – Patients Voices! Episode 1: Ezra Talks to Idan
The Hyper IgM Foundation Blog Episode 001: – Idan: In the debut episode, Ezra sits down with 11-year-old Idan Zablocki from New York. Idan, diagnosed with X-linked Hyper IgM Syndrome, also known as CD40 Ligand Deficiency, at just 8 months old, faced a...
IDF PI Conf. 2022: Long Term Follow Up for Hyper IgM – Dr. Ramsay Fuleihan
The Hyper IgM Foundation Blog Back in October 2022, the IDF in partnership with the Hyper IgM Foundation held a session as part of the 2022 PI Conference titled Long Term Follow Up for Hyper IgM Syndrome with Dr. Ramsay Fuleihan from Columbia Medical Center.
IDF Lunch & Learn: X-Linked Hyper IgM and HSCT – Dr. Andrew Gennery
The Hyper IgM Foundation Blog Back in March 2022, the IDF in partnership with the Hyper IgM Foundation held a Lunch and Learn with Dr. Andrew Gennery from Newcastle who presented on the transplantation options and outcomes for Hyper IgM Syndrome patients.
Are Carriers Really Unaffected?
IDF 2019 National Conference session, “Are Carriers Really Unaffected? Observations in XHIGM Carrier Females”, from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Martin Evans, DO on June 22, 2019
Update on Research and New Therapies
IDF 2019 National Conference session, “Update on Research and New Therapies: Interferon Gamma”, from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Antonio Condino-Neto, MD, Ph.D. on June 21, 2019.
Transplant or No Transplant
IDF 2019 National Conference session, “Transplant or No Transplant? Is Hyper IgM “Tricky” to Transplant?” from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Andrew Gennery, MD, MRCP, FRCPCH, DCH on June 21, 2019.
Overview of Clinical Aspects of Hyper IgM Syndrome
IDF 2019 National Conference session, “Overview of Clinical Aspects of Hyper IgM Syndrome (HIGM) and Therapeutic Options & Preventative Care”, from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Antonio Condion-Neto, MD, Ph.D. on June 21, 2019.
What About Carriers of XHIGM?
IDF 2019 National Conference session, “What About Carriers of XHIGM?” from the “Are Carriers Really Unaffected? Observations in XHIGM Carrier Females”, a Hyper IgM Syndrome (HIGM) Session, was presented by Troy Torgerson, MD, Ph.D. on June 22, 2019.
Update on Gene Editing
IDF 2019 National Conference session, “Update on Gene Editing”, from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Caroline Kou, MD on June 21, 2019.