Videos
The Hyper IgM Podcast – Patients Voices! Episode 4: Ezra Talks to Chris
The Hyper IgM Foundation Blog Episode 004: – Chris: In episode 4 of our Patient Voices Hyper IgM Podcast, Ezra talks with 37-year-old Chris Simpson from Texas. Chris talks about growing up with a primary immune deficiency and spending his childhood in and out of...
Italian National TV – Gene Editing for X-Linked Hyper IgM Syndrome
The Hyper IgM Foundation Blog A late 2024 scientific documentary on Italian National TV (RAI) showcased the work of Dr. Naldini at the San Raffaele Telethon Institute for Gene Therapy (SR-Tiget) in Milan. Dr. Naldini's research focuses on gene-edited CD4+ T-cells at...
The Hyper IgM Podcast – Patients Voices! Episode 3: Ezra Talks to Josh
The Hyper IgM Foundation Blog Episode 003: – Josh: In episode 3 of our Patient Voices Hyper IgM Podcast, Ezra talks with 16-year-old Josh Brown from the U.K. Like Ezra, Josh underwent a transplant at a very young age after being diagnosed with X-linked Hyper IgM...
IDF PI Conf. 2024: Hyper IgM Syndrome Sessions Recordings
The Hyper IgM Foundation Blog After a long hiatus from in-person events due to COVID restrictions, the Immune Deficiency Foundation (IDF) hosted its first national conference since 2019. Hyper IgM families from around the world joined over 1,000 attendees for two days...
The Hyper IgM Podcast – Patients Voices! Episode 2: Ezra Talks to Simon
The Hyper IgM Foundation Blog Episode 002: – Simon: In episode 2 of our Patient Voices Hyper IgM Podcast, Ezra talks to 12-year-old Simon Cooksey from Utah. Unlike Idan from Episode 1, Simon is not transplanted and is living with X-linked Hyper IgM Syndrome which...
Announcing – The Hyper IgM Podcast – Patients Voices! Episode 1: Ezra Talks to Idan
The Hyper IgM Foundation Blog Episode 001: – Idan: In the debut episode, Ezra sits down with 11-year-old Idan Zablocki from New York. Idan, diagnosed with X-linked Hyper IgM Syndrome, also known as CD40 Ligand Deficiency, at just 8 months old, faced a...
IDF PI Conf. 2022: Long Term Follow Up for Hyper IgM – Dr. Ramsay Fuleihan
The Hyper IgM Foundation Blog Back in October 2022, the IDF in partnership with the Hyper IgM Foundation held a session as part of the 2022 PI Conference titled Long Term Follow Up for Hyper IgM Syndrome with Dr. Ramsay Fuleihan from Columbia Medical Center.
IDF Lunch & Learn: X-Linked Hyper IgM and HSCT – Dr. Andrew Gennery
The Hyper IgM Foundation Blog Back in March 2022, the IDF in partnership with the Hyper IgM Foundation held a Lunch and Learn with Dr. Andrew Gennery from Newcastle who presented on the transplantation options and outcomes for Hyper IgM Syndrome patients.
Are Carriers Really Unaffected?
IDF 2019 National Conference session, “Are Carriers Really Unaffected? Observations in XHIGM Carrier Females”, from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Martin Evans, DO on June 22, 2019
Update on Research and New Therapies
IDF 2019 National Conference session, “Update on Research and New Therapies: Interferon Gamma”, from the Hyper IgM Syndrome (HIGM) Sessions, was presented by Antonio Condino-Neto, MD, Ph.D. on June 21, 2019.