Quality of Life Survey

Health-Related Quality-of-Life in Pediatric and Adult Patients with X-Linked Hyper IgM:

Dr. de la Morena and the investigators at Seattle Children’s Hospital are trying to understand how the diagnosis of the X-linked form of hyper-IgM (abbreviated XHIGM) impacts the lives of persons with this genetic condition.

If you are interested in participating in a research study titled “Health related quality of life in pediatric and adult patients with x-linked hyper IgM”, start with filling their survey.  For Spanish speakers please follow this link to the survey in Spanish.