The Hyper IgM Foundation Blog 

We are honored to see our founder and President, Akiva Zablocki, nominated for the Global Genes 2019 RARE Champion of Hope award! Akiva was nominated for this award because he has made a significant impact in rare disease advocacy. Akiva started the Hyper IgM Foundation to improve the treatment, quality of life, and long term outcomes for patients living with Hyper IgM, a one-in-a-million rare disease. As a result of Akiva’s persistent and tenacious advocacy, we have been able to bring critical resources and support to families even in the most remote corners of the world, fund research in support of a better cure, and educate the medical community regarding this extremely rare and life-threatening disease. We are so proud of Akiva and all the incredible work he does in support of our mission.